Meet Adesua
C.E.O. Founder of Voice of Adesua Sickle Cell Foundation

A motivational and Inspirational Voice of hope for Sickle cell disease patients. A Nigerian and a cinematographer by profession. A sickle cell disease patient and a mother of two biological children and also a mother to so many other sickle cell patients through her love and words of inspiration

SAMANTHA ADESUA ESANGBEDO,
C.E.O. Founder of Voice of Adesua Sickle Cell Foundation, A Motivational Speaker for Sickle cell Warriors, ENTERPRENUER, A cinematographer.
A Nigerian, born with sickle cell anaemia, discovered after so many years of living with Sickle cell disease and battling in shame, Hate, Stigmatization , Rejection, Self pity, Anger, Depression, Several attempts on Suicide, Aggression, Low self esteem, Inferiority Complex, and all that negativity that tags along with been a Sickle cell disease patients, in her words, that…

’THE GREATEST WEAPON TO FIGHT AND RISE ABOVE THE HEALTH CHALLENGES OF SICKLE CELL DISEASE IS UNCONDITIONAL LOVE and HOPE’ For self, From self, Around self ! So the
VOICE OF ADESUA WAS BORN !

CREATING MORE AWARENESS ON SICKLE CELL DISEASE TO THE WORLD.

OVERVIEW:
During the past 10 decades until now, Sickle cell disease has spread all across Nigeria, Africa, South America, Saudi Arabia, India, Turkey, Greece, Italy, North Europe and the world over; 100,000 African American are affected with sickle cell disease. 1 out of 13 blacks or African American babies are born with sickle cell disease. Now, as a Nigerian living with this disease, I’m very passionate about its stronghold on Nigeria. In Nigeria; sickle cell disease is increasing on a daily basis. Research also shows it will increase by 30% globally in the year 2050. However; Nigeria is known as the headquarters for birthing the largest population of Sickle cell disease sufferers across the globe. Over 150,000 sickle cell babies are born yearly in Nigeria with about 40 million carriers of the genes. In other words, Nigerians will be worst hit by this disease

Apparently, this only means that more and more awareness needs to be created about this deadly disease. The mortality rate of Sickle cell disease patients is very high compared to non-sickle cell disease patients. Do you know Sickle cell is a disease associated with only the black race? This disease is a disease of the cells. The cells are deformed, instead of having the normal round shape of a cell, It’s crescent-like in shape, hard and sticky, Making it difficult for free flow of blood and oxygen which leads to severe pains for the sufferers. These pains are mostly called crisis. Crisis can happen in any part of the body. Leads to failed organs and even death in some cases if not properly treated. It varies in individual sickle cell disease patients!.
There is a need for those already living with the disease and the carriers to get more love, hope, motivation and serious counselling on how to live with it and still function properly; be happy and live positively and productively

As a Sickle cell disease patient, and a mother of 2 living positively with it, ‘that is not to say I do not have my challenges’, I have been able to channel all my pain and all the negativity that comes with been a sickle cell patients to a purposeful life of positivity and happiness. These and more I would love to share with other fellow sickle cell disease patients, locally and in the diaspora.

GOAL:
Create awareness for all warriors and none warriors alike to know about the dangers of sickle cell anaemia; motivate, give hope and unconditional love by lending a voice to sufferers, their families and their friends. Raising funds to help breach the gap of poor treatment we in the Sub Saharan get, compared to those living with the disease in the western world. They stand a better chance of survival than us here.

SPECIFICATION:
People yet to be married should know the importance of checking their genotype before marriage. Parents of warriors need to be counselled. And sickle cell patients, young and old need to be desensitized.

MISSION
To create awareness without considering boundaries and location. Our voice will be heard and our hearts and hands will extend from Nigeria to Africa and to the world; through the Voice of Adesua.

BIOGRAPHY

SAMANTHA ADESUA ESANGBEDO,
C.E.O. Founder of Voice of Adesua Sickle Cell Foundation, A Motivational Speaker for Sickle cell Warriors, ENTERPRENUER, A cinematographer.
A Nigerian, born with sickle cell anaemia, discovered after so many years of living with Sickle cell disease and battling in shame, Hate, Stigmatization , Rejection, Self pity, Anger, Depression, Several attempts on Suicide, Aggression, Low self esteem, Inferiority Complex, and all that negativity that tags along with been a Sickle cell disease patients, in her words, that…

’THE GREATEST WEAPON TO FIGHT AND RISE ABOVE THE HEALTH CHALLENGES OF SICKLE CELL DISEASE IS UNCONDITIONAL LOVE and HOPE’ For self, From self, Around self ! So the
VOICE OF ADESUA WAS BORN !

The Birth of Voice of Adesua

CREATING MORE AWARENESS ON SICKLE CELL DISEASE TO THE WORLD.

OVERVIEW:
During the past 10 decades until now, Sickle cell disease has spread all across Nigeria, Africa, South America, Saudi Arabia, India, Turkey, Greece, Italy, North Europe and the world over; 100,000 African American are affected with sickle cell disease. 1 out of 13 blacks or African American babies are born with sickle cell disease. Now, as a Nigerian living with this disease, I’m very passionate about its stronghold on Nigeria. In Nigeria; sickle cell disease is increasing on a daily basis. Research also shows it will increase by 30% globally in the year 2050. However; Nigeria is known as the headquarters for birthing the largest population of Sickle cell disease sufferers across the globe. Over 150,000 sickle cell babies are born yearly in Nigeria with about 40 million carriers of the genes. In other words, Nigerians will be worst hit by this disease

Apparently, this only means that more and more awareness needs to be created about this deadly disease. The mortality rate of Sickle cell disease patients is very high compared to non-sickle cell disease patients. Do you know Sickle cell is a disease associated with only the black race? This disease is a disease of the cells. The cells are deformed, instead of having the normal round shape of a cell, It’s crescent-like in shape, hard and sticky, Making it difficult for free flow of blood and oxygen which leads to severe pains for the sufferers. These pains are mostly called crisis. Crisis can happen in any part of the body. Leads to failed organs and even death in some cases if not properly treated. It varies in individual sickle cell disease patients!.
There is a need for those already living with the disease and the carriers to get more love, hope, motivation and serious counselling on how to live with it and still function properly; be happy and live positively and productively

As a Sickle cell disease patient, and a mother of 2 living positively with it, ‘that is not to say I do not have my challenges’, I have been able to channel all my pain and all the negativity that comes with been a sickle cell patients to a purposeful life of positivity and happiness. These and more I would love to share with other fellow sickle cell disease patients, locally and in the diaspora.

My Goal and Vision

GOAL:
Create awareness for all warriors and none warriors alike to know about the dangers of sickle cell anaemia; motivate, give hope and unconditional love by lending a voice to sufferers, their families and their friends. Raising funds to help breach the gap of poor treatment we in the Sub Saharan get, compared to those living with the disease in the western world. They stand a better chance of survival than us here.

SPECIFICATION:
People yet to be married should know the importance of checking their genotype before marriage. Parents of warriors need to be counselled. And sickle cell patients, young and old need to be desensitized.

MISSION
To create awareness without considering boundaries and location. Our voice will be heard and our hearts and hands will extend from Nigeria to Africa and to the world; through the Voice of Adesua.